My story

I’m Gabi. I have displayed symptoms of POTS and MCAS by first grade and my symptoms got worse as I grew older. I saw many doctors throughout my life. Most of them thought nothing of my seemingly random symptoms. The handful of doctors who did care weren’t educated enough to help.

When I was 28, I started experiencing a burning in my hands and feet, and tremors. That coupled with my life-long chronic fatigue looked like MS. All of a sudden my doctors were concerned but were baffled.

Over the next 6 months, I saw 9 specialists— 2 of which were neurologists. I eventually received the diagnosis of POTS and went on medication. 1 year after being on medication, I still wasn’t improving. After another year of seeing more doctors, including 2 more neurologists, I gave up on seeing doctors in my large city and decided to go elsewhere. I eventually found a doctor who truly specializes in POTS. I learned that I had HyperPOTS and MCAS. From there, everything started to make sense. 

Why I created POTSinfo.com

I made this website because it took far longer than it should have for me to receive medical help. If doctors took me serious earlier, or if they were more educated, I could’ve had a very different life.  

I have a design degree and know how to design websites. With my privilege and education, this website is my way of helping others. No one should have to suffer as long as I did and I want to do what I can to help others get the treatment they need.

About POTSinfo.com

• I am a not a doctor or medical profession. I am a chronically ill person doing this out of good will.

• I include scientific articles and citations/sources so people can do their own research.

• I make educational printouts that include citations so people can have educational resources at their medical appointments.

• I am not a business or non-profit. I do not take donations and nothing is sponsored. This site does not make any money.

  Nothing I do that is related to POTS education makes money either.

• Everything is done by me— That includes the website and printouts. Graphics not made by me were purchased through Shutterstock or Adobe.

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