Testing & Diagnosis
Diagnostic criteria
The only test that can diagnose POTS is a Tilt Table Test*
*also referred to as an autonomic function test
A heart rate increase from horizontal to standing (or as tested on a tilt table) of at least 30 beats per minute in adults, or at least 40 beats per minute in adolescents, measured during the first 10 minutes of standing plus monitored symptoms.
& an absence of significant orthostatic hypotension (magnitude of blood pressure drop ≥ 20/10 mm Hg).
Source Hopkins Medical
POTS is often diagnosed by a Tilt Table Test, but if such testing is not available, POTS can be diagnosed with an at-home tilt test” often referred to as “A Poor Man’s Tilt Test” (bedside measurements of heart rate and blood pressure taken in the supine (laying down) and standing up position at 2, 5 and 10 minute intervals).
Source Dysautonomia International
POTS & other types of Dysautonomias are not diagnosable by
EKG
Blood pressure
Bloodwork or urine
Those sorts of tests can potentially help rule out other disorders or can confirm a POTS subtype, but they are not the way to diagnose POTS.
Is it possible to do the Tilt Test at home?
Yes, you can do a variation at home
You’ll need heart rate monitor such as a Fitbit/Apple watch, Blood pressure device, or Oximeter. Many POTS specialists consider this valid for treatment.
Other tests your doctor may order
EKG
1-30 day holtor monitor
24 hour blood pressure monitor
QSART (usually included in a formal tilt test)
TST
Gastric emptying study to check for Gastroparesis
Nerve biopsies to check for Small Fiber Neuropathy
Catecholamines for HyperPOTS (not 100% accurate)
Source Cleveland Clinic
What is not considered POTS diagnostic criteria
Fainting: People with the adrenaline subtype often never faint
Dizziness: Some people with the adrenaline subtype often never get dizzy or lightheaded
Blood pressure changes: This is taken into account and can help diagnose subtypes, but it is not a part of diagnostic criteria
Gender: Boys & men can get POTS
Age: People of any age can get it. You cannot be too young or old
Appearance: It doesn’t matter what a person looks like, they can have POTS